NE NEWS SERVICE
AHMEDABAD, FEB 19
Minister of State and Home Harsh Sanghavi on Sunday flagged off the eighth edition of Racefor7, a 7km event, here on Sunday, to raise awareness for the rare disease community in India. Racefor7 symbolically represents the 7,000 known rare diseases, the estimated 70 million rare disease patients in India and the average of 7 years it takes to diagnose a rare disease.
In a show of solidarity, the event saw the participation of over 500, including from rare disease patients and their families.
The Ahmedabad event was held at New LJ Campus, LJ University, Off S G Road, Makarba from 6.00 am onwards. Over 500 + enthusiasts who supported the cause of raising awareness on Rare diseases have registered for the Walkathon, Cyclothon or Run took part in the event.
All participants were distributed a t-shirt bearing the name of one rare disease to help spread awareness, finisher medals and e-certificates.
“Racefor7 is one of the world’s largest multi-city events to raise mass awareness about Rare Disease. Racefor7 aims to create awareness and the need of preventive measures to contain Rare Diseases such as Consanguineous Marriages, Prenatal Tests, and Informed decision about child birth, New Born Screening, Precision Healthcare and Innovation etc,” ORDI Gujarat Coordinator Jaya Srivastava said.
